adults with HGH deficiency

HGH Forums HGH Forum adults with HGH deficiency

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  • #1507
    Thonind
    Participant

    I’m really interested in finding out more information about HGH deficiency in adults and also in hearing from other people who are having human growth hormone deficiency, to talk to you guys and explain me it all.. I am really interested in what you experience and how you deal with it. the reason why I ask is that I have been going through some terrible couple of years lately so I was hoping that I might get some help here… the thing is that nearly every other day I am hitting a wall of exhaustion with face and head pain and then I am getting a migraine… at least, the good thing is that I am always waking up the next day morning feeling much better. I have had 2 pituitary surgeries so that is how my endocrinologist doctor has found out that I am having HGH deficiency myself. that is why, please, can you people explain me how you deal with this? what do you experience? what you do to feel better? for how long you suffer from it? what is your age and general stuff like this. I would really like to talk with you people, to hear from others about their journey and most importantly, what you have decided about the replacement injections. thank you very and very much in advance for everything, I appreciate it a lot!

    #1508
    AmyGodness
    Participant

    hey there… I am now having hypopituitarism… I have had a surgery done on my pituitary tumor a bit less than 7 years ago but it then grew back and it has been inoperable this time so I have had a cyber knife radiation then. it was successful, since I am still here, but not without sacrifices… since then I have lost several of my hormones. I am currently replacing hydrocortisone, synthroid and also, as of a few days ago, also replacing growth hormone.

    before starting with HGH I have read about it a lot, of course, I have done lots of research on this so I know a little bit about it but I am still concerned. I was concerned since the day I found out about the side effects and to be honest, I am still concerned about what I read on it. due to the fact that my body is not producing it anymore on its own, my neuro endrocrinologist has recommended that I am going to start out at the .4 mg per day of it. as I have said, my body isn’t producing it anymore so I am taking only .4 mg per day. if your body is still producing it then I guess that you are going to need a much less dosage. as I have said, just a few days ago I have been on it but just last night I have taken my first dosage and to be honest.. when I have woke up this morning today I have been feeling, surprisingly, excellent! I mean, I was hoping that it is going to work for me, but I was expecting that it is going work after a while of taking it. I mean, it really helps me and I know it because the last week or so I have been waking up being exhausted completely, I have been feeling totally hung over.. or at least I was feeling this way until my hydrocortisone has finally kicked in but even so I wasn’t feeling really well. I mean, before it kicked in I have been feeling extremely bad and awful, but after that I just felt like I was struggling. in short – not well… so, as I have woken up feeling excellent today – of course that was a bit of shock for me.

    and now I’ve got to tell you that a few hours later – so far so good. if this continues to go like that and the side effects would be the same as they are now (none) then I am surely going to continue on like this. I am not sure what about the tolerance in regards of HGH but I doubt that there is such stuff. but now I am just really enjoying the moment as I am having no swelling of my hands or my feet. the injection site it is just fine which is a surprise too as I was thinking that it is going to irritate my skin since it is the first time. again, I am feeling like I am having more energy and generally, I can dare to say that I am feeling normal now. but I still don’t forget that this is only the beginning and this might change over some time which I really hope that it is not… but so far I am feeling normal. what I am sure about is that if you are having HGH deficiency then it is worth to at least try it out. not trying to say that it is gonna be good for you too (or if its gonna be good for me in future) but trying is always good.

    #1510
    Almosiness
    Participant

    hi there everybody… I am going to try to help you about this… I will try because I have been on growth hormone for almost a year myself and it was really helpful. I have stopped to take it because I have got pregnant after a year of being on it and since there is no research that is saying either it is fine to take it while you are pregnant or not (it might, but it also might not be safe, so I didn’t wanted to risk) and that is why I have stopped to use it. however, guys, I tell you – while I have been on it, it did work wonders for me. I am not trying to say that it would work the same way fr you but who knows? I don’t, you don’t and your doctor don’t know it either. you’ve should try and then you’re gonna find out.

    what I am surprised to read here is that the previous user said that he/ she started to take it and the next morning the effects kicked in making you feeling excellent. I mean, you either are not taking HGH and something else or some kind of ultra super hyper fast acting HGH and that’s because it took me approximately half a year (6 MONTHS!) in order to start to feel the effects for me. I have no idea how you’ve felt them so fast. but what I do agree with you is that they do make you feel good.
    I have always been feeling like crap, I was all miserable, no energy to do anything, always been tired, there were days when I was waking up tired. I was always sick and the headaches were something normal for me. I wouldn’t really recommend to try it if you haven’t been said to try it by your doctor, however if your doctor said that it is gonna help you and he/she was that one who has told you to try it then go and try it. I mean if your endo is telling you to take it then most likely you must do it and I do know that it sucks and it doesn’t really sound good that you must stick yourself to this thing every single day, that’s just something you don’t really want to do in my opinion, I know it because it is something that I didn’t wanted to do myself but just remember that this is not such a big problem because it is like a diabetes needles so it does not hurt at all. that’s just something you should do and that’s it, without much struggle or pain or whatever. I personally always have had my sister to do it on my butt (but you can ask whoever else is around you – your spouse, mother etc. etc) so the only negative thing about this was that I have had just some little tiny bruises on my butt. I was really happy that this was the only negative thing… at least the only negative thing for me. either way.. I am blabbing right now but if you want, you could give some questions that you may have and I am going to try my best to answer them all. hope this is gonna be helpful and I hope you would find it helpful. you just must find the right dosage (your doctor is gonna help you with this, my doc. did helped me with this) and the rest you’re gonna deal with it all easier.

    #1511
    AmyGodness
    Participant

    I just want to ask you.. did you have to increase your thyroid medication or hydrocortisone medication in the time that you are using growth hormone? the reason I ask is that I am now noticing over the second day that I have been on the growth hormone that I really seem to be a little bit more tired in the afternoon which makes me wonder either it is due to the fact that the effect of HGH goes away? and also, how is that possible? 6 months until it kicked in? maybe you started to feel it immediately but it *fully* kicked in? did you have had a significant release of weight in the first half a year on the HGH?

    #1513
    Almosiness
    Participant

    yes indeed, they did have increased it but only my levothyroxin… in regards of the drowsiness I would say that it is most likely from not enough thyroid replacement. I mean, I am not a doctor and I can’t know for sure, but it is likely to be so, better tell about that to your doctor and he’s gonna be able to tell you a better answer IMO. but yes, indeed, it is taking about half a year (6 months) in order to completely enter your system. the reason why I have started to take it was that I was mainly hoping to get a bit more energy and it did gave me energy and made me feel more focused and cocentrated and motivated but it also helped for the joint pain.. I mean it is helping a lot! unfortunately, as I said, I needed to quit in the time that I have got pregnant and I really wanted a lot to start all over again later, but sadly for me, I couldn’t afford as the insurance is really tough…

    and yeah, I nearly forgot to mention one very important thing, it is the fact that there was no change with the cortisol at all. not trying to say that it is a bad thing, but it did not helped me personally.

    #1514
    Thonind
    Participant

    hello once again everyone, I am really thankful to each one of you for all of your replies and recommendations, I hope that this is gonna help me in the future. but I am also really interested.. please, can you share what were your symptoms that you were suffering from? what were the worst ones? how you were dealing with it? I mean, I do see that there are a few symptoms mentioned by you people, but could you be more exact please? and you could tell… did anybody have some really bad and extreme fatigue in the afternoons and evenings with some headaches?

    can you also tell me what kind of tests did you do that has showed you that you had a low HGH? also please tell me how low were you on the standard deviation for HGH? also, can you tell me, please, did you have to do specific tests in order to qualify for the injections? I guess, from all these questions you’ve already got it… I am not very sure if I have HGH low levels or there’s something else, but I am intending to do the tests and find it out. thank you all very much for your information, I appreciate it a lot but to be honest, it even helps just to talk about it, it makes me gather more information which I am sure that it is gonna be helpful in the future.

    #1658
    Almosiness
    Participant

    Um well… I’m very sorry for such a late response, I don’t know how I have missed your post with those questions… I am really sorry for this… anyway, I am going to try to help you now for whatever it might be good for now…

    So well, I am going to have to get that paperwork that I had from my endo, it has been back ago, 3 years ago in like 2014. I can tell you that I am always feeling fatigued by 5 or 6 and to be fully honest with you, I just don’t really remember how much it has helped me in terms of energy wise.

    Anyhow, I can tell you that I have had some more issues with the joint pains and heart flutters the fatigue, that, to me, it is kind of second nature for me now… whichever the case, I am going to try to get my results for you in a few weeks and if I do get them I would make sure that I come here with an update. Maybe its going to be any helpful for you. Good luck!

    #1660
    Kerman
    Participant

    Hello there, I can tell you that I have been using HGH for around 7 years now and so, of course, I do have a bit of experience and a bit of knowledge with it. For those who are wondering the way I use it – my dosage it is 0.2 mg, or as many people used to calculate doses in regards to HGH – 1/2 IU and I am taking it on a daily basis, every night. I’ve gotta say here that my IGF 1 level has been even below than the range at 100, however it has then gotten up all the way to approximately 250 or so on the injections. With their help I can tell you that I started to feel better as my fatigue as well as my muscle strength has improved a lot! It really increased very much, however I still must tell you that it is still not a cure for me. The reason why I said that it helped me a lot with fatigue and improved a lot my muscle strength but it is still not a cure for me is that I am still having levels that are below average of strength for my age and I am still getting pretty much fatigued (the only thing is that it is better now). I still am thankful to this thing and I still think that it is really helpful because it has been a lot much more worse than before I have been put on those shots, so I am really thankful to them.

    Also, you can find online such information as: you would need some months in order to see the benefits on injecting HGH. And that’s, partially true. Partially because there are indeed people who do start to take HGH injections but they can’t see any benefits only after being some months on them. But for me that’s different. Either because I have been having some REALLY low levels or I don’t know… all I know is that even though it requires some months in order to fully see those benefits of getting HGH, I still have started to feel the good effects of injecting the HGH nearly instantly.

    I must mention here that I have taken an arginine stim test however did not fail it and that is why the insurance has refused to cover it at first and so I have paid out of pocket for a couple of years which was a struggle as constantly giving money for them wasn’t so pleasant when I knew that I could spend my money somewhere else… but I was still fine because it has been a lot much more cheaper back then compared to the nowadays price. But anyhow… luckily, a few years ago, we have tried once again to get it covered and low and behold, luckily, the insurance has approved and that was amazing news for me! I’m not sure here and I can’t even be sure here, however I just think that it might have something to do with the thing that I have been paying for it myself and all of that has been documented, and so, they could see in those documents that I have went through improvements in quality of my life with the help of it and I guess that’s why they approved. I am not really sure about the reason, of course, as I never really asked… I was and I am just happy that they did approved as it is amazing for me. It is all easier and better, the only thing is that every year I just have to go through another pre approval process… but as much as you can understand, that’s by far not a big problem and again luckily, since then, they have approved every year after first approval.

    Whichever the case, I what I want to say is that this stuff is a wonderful stuff, at least for me. It is an indeed amazing hormone to replace and I tell you guys, at least for me, it is worth absolutely every single penny for this thing. I do think that it is overall amazing and with no issues to be concerned of. The reason why people still think of it as being dangerous and that it is strongly given only with a prescription is that there are people who abuse it but obviously, anything that you abuse is bad. Abuse water and it is going to kill you as well. Even too much oxygen can kill you. But we don’t take water and oxygen by prescription… too bad that there were those sports figures who abused it and so they gave this stuff a bad name since I really think that this is hurting a lot those of us people who are in a real need of using it… I wish you all good luck and I hope you’re all gonna be safe.

    #1661
    Thonind
    Participant

    Thank you very and very much for your information, I appreciate it extremely much! I found it helpful and I will keep it in mind. I wish you all the best and I hope your stuff is going to continue working for you like that. Best wishes!

    #1662
    AmyGodness
    Participant

    Hi again, I wanted to update a bit… I have called my doctor’s office some days ago and that’s because I have not been feeling well at all. I mean.. I was feeling sort of like I have been encased in jell o so I wanted to get some answers. Par for the course with hypopituitarism, I mean, I have not been able to lift my arms, nor my legs, I have been kind of feeling like they are going to give out soon and plus to that, my head has been feeling full of some mush and I was all dizzy. Wasn’t feeling fine at all. Plus to that, I did have tried extra hc but it has not helped me at all. So well, my doctor has told me that I must stop to use the growth hormone for 2 weeks and after that, to start to use the hg once again, but this time to start at half the dose that she had given me the first time. I do realize that I should have followed my intuition on this one. Well, she has prescribed me to take .4 mg per day. I mean, I did have feeling/ thought that the dose she gave me seemed to be a little bit too high but I still followed her instructions as said. In fact, I should say that I have even called the office back then in order to check if I should start at a lower dose… I mean, I did felt that I should have done it as the dose was too high for me. Whatever the case, I did felt better a bit better yesterday, however I am still having muscle fatigue now. This stuff is really good indeed, but you should keep an close eye to the dose because as you can see, a too big dose isn’t good either. But anyway… who knew that trying to treat these hormone imbalances I am going through would be pretty much like buying a lottery ticket and hoping a win… although I thought about this as well… whatever the case, I just thought that I should update here with this information and warn you that if you do not feel fine at the dose you are being put by your doctor, call and tell them this. Take a lower dose and check how you are feeling. I do feel better now.

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